My Dad by Megan Parsons

June 4, 2009

[editor's note: this article was originally posted by Megan on November 22, 2008, however due to an apparent site error, it was deleted. It's been republished here, verbatim]

My dad asked me to write on here and not to hold anything back, so I’m gonna try to do just that.  Since I was a baby my time with my dad was limited to every other weekend and whichever day of the week we were decided on at the time. I didn’t think much of it then, because it was all I ever knew.  But now I feel that I was cheated. I think it’s not fair that most of my sisters’ friends got to spend more time with my dad then I did.  I love to just sit down with my sisters and listen to stories about him (most of which are extremely funny) but it hurts a lot to know just how much I missed out on.  Its amazing how many lives he has touched, and will continue to touch.  Reading all the comments on this site proves this.  My dad has taught me so much, to write it all on here would take a life time.  One thing is that you have to work for what you want, nothing in life comes free, but he also taught me that this is a good thing.  What is anything worth if it’s just handed to you? What do you have to show for it, to be proud of? This implies for everyone, but some people just choose to take the easy way out, but they will pay for it later.  He taught me the value of respect.  He has taught me many more without even saying a word to me.  His actions speak for him. Sure he has made mistakes, but he wouldn’t be human if he hadn’t.

I remember the day he told us about his disaease.  He told us that he wanted to get all of us together and tell us something. Jackie and I were talking, and we had noticed something wrog with his hand.  We just thought that he had to have surgery or something and was overreacting, we really weren’t that  worried.  He told me to go sit outside with the kids while he talked to my sisters.  When they were done I saw Jackie walk out of the house crying.  That was when I knew it was something more than just surgery.  He came outside and told me about it. I really didn’t understand much he said at all, but I cried a lot. Later that night I learned he talked to me separate because he told them more details. Probably, thought I was too young to hear everything. Even then I was very mature for my age, and my sisters knew it, so they told me more. I didn’t really understand much about it at all until his disease started to progress. I pretty much learned from seeing it happening. All the stuff on the Internet was a bunch of medical crap that’s impossible to understand. Still though, I always thought that they would get a call from the doctor, saying that they made a mistake, that a simple surgery was really all he needed and our life would go back to normal. But no one ever called, and he only got worse.

In the past two years I have grown up so much, learned so much. Everyone takese things for granted, and at one point or another, we will always regret it. You really never know what you have until its gone. I never really thought much about the little things until this happened, but now I would give anything in this world to just wrestle around with my dad, have him give me a hug without having to strain to get his arms around me. My sisters are much more lucky then they realize. They got to grow up with him there all the time. I’m also very lucky that me and my sisters have a good relationship, we never really fought at all, therefore we can be there for each other, for if there is ever a time we need each other, it’s now.

These past two years have gone by so fast. Time is slipping by so fast, and yet, there is so much left unsaid, left undone. It seems like yesterday my dad and me were on our way to Michigan. When he could still walk on his own, drive, stil l had his freedom. But now only a little over a year later, he is confined to a wheelchair, and pretty much dependent on other people. Even though he doesn’t complain much about it, I know it hurts him so much to depend on people. He was always independent, even as a child, and now its like his life has been stolen from him. Its so unfair. Nobody deserves something like this. It makes you question everything you believe in. You get so messed up and lose everything you though you had. You never think something like this would happen to you. You see all these things on the news or in the paper and you thing “Wow that sucks” but you never really put any thought into it. Really whats the difference between you and someone that dies, gets in a car crash, loses a family member, loses their house? They all have family, friends, pets, everything that you have, so why couldn’t it happen to you? I think everything happens for a reason, why this happened, I have no idea yet, but something will come out of it. Good? Bad? No one knows. But I do know that I have learned thtings because of it. I’ve learned not to take things for granted, learned to make the most out of life, for you never know when something might happen. Everyone dies, my dad just has some kind of idea when. But in the process he must suffer, which is too unfair to explain. Like I said, he has made mistakes, but no mistake is bad enough to deserve a life like he has now.

It’s kinda funny, how when you learn something exists, you see it everywhere. For example, before my dad got ALS, I’d never even so much as heard of it, but now it seems to come up everywhere, in the books I read, the tv shows I watch, even in school, the were reading a book about it called “Tuesdays with Morrie”. Even though I’m not taking the class they are reading it in, I read it as soon as I heard about it. It was a very good book, and I recommend it for anyone that knows my dad. Morrie is a college professor that learned he had ALS in August of 1994 (Kind of ironic huh? I was born in one month after, and dad also learned he had it in August of 2006) the book goes through a series of “lessons” that Morrie teaches a former student (author of the book) Mitch Albom. They always take place on Tuesdays, and Morrie teaches Mitch the lessons of life and love. I read this book in about a day. It was very sad, but somehow made me feel good. Let me know that even though this is a disease with no cure, positive things can come from it.

My father has always been the strongest person I know, and no matter how physically weak he may be, he will always be the strongest, best man I will ever know.


The ALS Association Walk to Defeat ALS

November 23, 2008

Some photos from the recent event…


Can you help out?

November 10, 2008

This is a guest-written article:

Hi Denny,

It’s your’ friend of the last 30 or so years. By the way I am part of the 7%. I have been by Dennys’ side from the beginning and intend to stand by his side until the end. Originally I never planned writing on this website, because I talk to or see Denny everyday. But a recent e-mail sent from him and a urgent need in his life changed my mind. The e-mail is entitled 7%.

A HOLY MAN WAS HAVING A CONVERSATION WITH THE LORD ONE DAY AND SAID, ‘LORD, I WOULD LIKE TO KNOW WHAT HEAVEN AND HELL ARE LIKE.”
THE LORD LED THE HOLY MAN TO TWO DOORS.
HE OPENED ONE OF THE DOORS AND THE HOLY MAN LOOKED IN. IN THE MIDDLE OF THE ROOM WAS A LRAGE ROUND TABLE. IN THE MIDDLE OF THE TABLE WAS A LARGE POT OF STEW, WHICH SMELLED DELICIOUS AND MADE THE HOLY MAN’S MOUTH WATER.
THE PEOPLE SITTING AROUND THE TABLE WERE THIN AND SICKLY. THEY APPEARED TO BE FAMISHED. THEY WERE HOLDING SPOONS WITH VERY LONG HANDLES THAT WERE STRAPPED TO THIER ARMS AND EACH FOUND IT POSSIBLE TO REACH INTO THE POT OF STEW AND TAKE A SPOONFUL. BUT BECAUSE THE HANDLE WAS LONGER THAN THIER ARMS, THEY COULD NOT GET THE SPOONS BACK TO THIER MOUTHS.
THE HOLY MAN SHUDDERED AT THE SIGHT OF THIER MISERY AND SUFFERING.
THE LORD SAID, ‘YOU HAVE SEEN HELL.’
THEY WENT TO THE NEXT ROOM AND OPENED THE DOOR. IT WAS EXACTLY THE SAME AS THE FIRST ONE. THERE WAS THE LARGE ROUND TABLE WITH THE LRAGE POT OF STEW WHICH MADE THE HOLY MAN’S MOUTH WATER. THE PEOPLE WERE EQUIPPED WITHT HE SAME LONG-HANDLED SPOONS, BUT HERE THE PEOPLE WERE WELL NOURISHED AND PLUMP, LAUGHING AND TALKING. THE HOLY MAN SAID, ‘I DONT UNDERSTAND.’
‘IT IS SIMPLE,’ SAID THE LORD. ‘IT REQUIRES BUT ONE SKILL. YOU SEE THEY HAVE LEARNED TO FEED EACH OTHER, WHILE THE GREEDY THINK ONLY OF THEMSELVES.’
WHEN JESUS DIED ON THE CROSS, HE WAS THINKING OF YOU. ITS ESTIMATED 93% WONT FORWARD THIS. IF YOU ARE ONE OF THE 7% WHO WILL, FORWARD THIS WITH THE TITLE 7%.
I’M IN THE 7%
REMEMBER THAT I WILL ALWAYS SHARE MY SPOON WITH YOU.

fear, which is spelled f-e-a-r, stands for “False Evidence Appearing Real”.
for with God nothing shall be impossible. -Luke 1:37

The reason that I posted this is, that our friend Denny is entering into his own private personal Hell. His disease has advanced to the point that he can no longer use his hands for anything. We are desperately searching for some much needed assistance. If you have days off during the week, and would like to spend some quality time with Denny, then please give him a call. He needs assistance with common everyday tasks that we take for granted. The situation that he is faced with now, is that if we cannot get help during the work day he will have no choice but to be sent to a home/facility. Our goal is to keep him in his home as long as possible. But he needs all of his friends to pitch in at this point in his life.

If you are willing to share your spoon with Denny please call him or e-mail him at dmanwildchild@yahoo.com.

I know Denny has always been there for me and most of you. Together we can make this work to keep Denny happily at home as long as possible.

Thank You!


Some updated photos

December 30, 2007

I visited for a short while with Denny today to catch up on how he’s been this holiday season, and snapped a few more photos of his progression.

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Denny needs two hands to open his pack of cigarettes.

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Denny’s leg braces help keep him walking around the house without additional support most of the time. 

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Denny shows how the progression of ALS has crippled his hands, and cause atrophy of some of his muscles causing them to sink in somewhat. 

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A friend of Denny’s custom made him a cane that straps onto his wrist and gives a better handle for support than a traditional cane.

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Denny shows off his new walker while talking about how he’s going to trick it out with some flame decals and such.

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 This photo shows the laceration on the back of his head, suffered during a mishap in the house where he lost the strength in his leg momentarily.


Denny through Song

December 6, 2007

By Greg Allman – I’ll be holding on

I have lived my life my way For tonight and for today It’s the strongest hearts they say That always survive I’m fallen through the years As each dream it disappears When the night is full of tears
I’ll be holding on Now this life is instant black But I won’t be looking back The rain washed out the tracks
I’ll never find again I’m still reaching for the light I’m still wearing out the night And you know I’ll be alright
I’ll be holding on
When I stand alone I don’t stand on memories Of all the ones you’ve known
I’ll be holding on
I know how it is I know how it will be (When) All the rest are gone
I’ll be holding on
Well my life is made of sand It flows right through my hand Each day I make a stand
And I’ll see it through I’ll be reaching for the light I’ll be wearing out the night
And you know I’ll be alright
I’ll be holding on
When I stand alone I don’t stand on memories Of all the ones you’ve known
I’ll be holding on
I know how it is Cause I’m broken when I’m open And I don’t feel like I am strong enough
Cause I’m broken when I’m lonesome
And I don’t feel right when you’re gone away I know how it is I know how it will be
(When) All the rest are gone
I’ll be holding on.

By Iron Maiden – Wasted
From the coast of gold, across the seven seas I’m traveling on, far and wide But now it seems, I’m just a stranger to myself
And all the things I sometimes do, it isn’t me but someone else
I close my eyes, and think of home Another city goes by, in the night Ain’t it funny how it is, you never miss it till it’s gone away
And my heart is lying there and will be till my dying day
So understand Don’t waste your time always searching for those wasted years Face up…make your stand And realize you’re living in the golden years
Too much time on my hands, I got you on my mind Can’t ease this pain, so easily When you can’t find the words to say, it’s hard to make it through another day And it makes me wanna cry, and throw my hands up to the sky So understand Don’t waste your time always searching for those wasted years Face up…make your stand
And realize you’re living in the golden years
By Seether –Broken I wanted you to know I love the way you laugh I wanna hold you high and steal your pain away I keep your photograph; Not know it serves me well I wanna hold you high and steal your pain
Cause I’m broken when I’m lonesome And I don’t feel right when you’re gone away ;you’re gone away; you don’t feel me here anymore The worst is over now and we can breathe again
I wanna hold you high, you steal my pain away
There’s so much left to learn, and no one left to fight
I wanna hold you high and steal your pain
Cause I’m broken when I’m open
And I don’t feel like I am strong enough
Cause I’m broken when I’m lonesome
And I don’t feel right when you’re gone away


The Good, The Bad, and then there is Great.

November 18, 2007

Sometimes my anger can get the best of me with people who just don’t seem to care about anyone but themselves. Ah a ray of sunshine, I read all the comments made about my Denny and all the love that pours out of each and everyone of you. A man truly blessed with so many people who love him and admire him. For someone to read how he has touched so many lives and made such a big impact. Denny is a man full of pride and a heart of gold. Denny is a giver, he takes care of people and it is very hard for him to finally have to ask for help. It touches his heart very deeply to have someone give back. As we all know by now how this ugly disease works, taking away your mobility to do the simplest things in life. Denny is starting to realize just how much help he is going to need and changes in his life that will be taking place. One of Denny’s very good friends, Scott Kelley, who is a Scout leader, took on the challenge of helping Denny. James Fyock, a Scout, wanted to help. You see Denny and Diana’s driveway is on a very steep hill and is all gravel; knowing that Denny will require a wheelchair and will be unable to get in and out of the house, James took it upon himself to get a driveway for Denny. Denny put James in contact with Joe Maite’s who tries to help families out in need. Denny use to work with Joe at Akron Special Machinery here in Akron. In turn Joe put James in touch with Perrin Concrete Construction Inc. After a lot of phone calls and planning it all came together. Denny was getting a new driveway donated to him. Denny is overwhelmed by the kindness and the help that these wonderful people gave. Special thanks goes out to: James Fyock, Eagle Scout project manager, Mitchell Kelley, Ted Wood, Justin Hayhurst and JacobWood Eagle Scout helpers, and Joe Maite’s for making the contacts and making this happen. Scott Kelley, Venture Crew Advisor and Lisa Fyock – Mom and helper. Chuck Perrin – 1 of the owners, Dan King – operations manager, Brian Hayth – concrete worker of Perrin Concrete Construction Inc. Also wish to include Pizza Hut donated 2 large pizzas for the workers and out of his own pocket Mitchell Kelley bought hamburgers for everyone. In Denny’s words: “There are people I have just met, through people I have known forever, all have donated their time and efforts to helping out a stranger or a friend, if there were more people like them in this world, the world would be a much better place. When it is all said and done I will be watching over all of you.” Denny would like everyone to know that this company, the kindhearted and honest people helping him and recommends them to anyone. It came to back to Denny later that Perrin Co. offered to pay the workers for their hard work and time. And each and every one of them turned it down. Great people or what?

Perrin Asphalt and Concrete

525 Dan Street, Akron, Oh 44310
Phone: 330-253-1020

Fax: 330-253-1042
Direct: 330-252-2125

Wonderful people, doing wonderful things! Again MUCH THANKS and you did a beautiful job. It looks wonderful and I know it is deeply appreciated by Denny and Family. It is Great to know that people can touch back to the man who touches to many lives. We all love you, Denny.


How does one handle this one?

November 18, 2007

I received a call from Denny, all excited, he had heard about a medical research facility that could maybe help him. He had heard from a friend who had a similar diseases and after going to this facility he was feeling stronger and better. Denny called them and told them all about what was going on with him and can they help. They set him up for the appointment; the facility was in Columbus OH. Diana and Denny drove there the night before and stayed in the hotel. Denny holding on to some hope that maybe, just maybe there was some help. Only to go in for his appointment for the doctor to be reading over his chart and as she was reading down the chart saying “I don’t see that you have ALS but reading this” Denny’s heart just stopped and the jaw hits the floor. And in Denny’s words, he was extremely angry for the wasted trip and getting a glimpse of some hope, the words he used, sorry can’t print here. The thought of “What?” comes to mind. But as the doctor continues to read down the chart of all the test “Oh yes I see you have been seeing Dr. ???, and if he says that is what it is then that is what it is”. “But we are sorry Denny we can not help you here for ALS. Because there is no cure for this and we do not”. “The research comes to us once in a while.”

Denny explains that, “I told you this all over the phone that I had ALS”.

“I am sorry there must have been some kind of misunderstanding. I won’t charge you for your visit due to the misunderstanding, but I will tell you there is no medication out there FDA approved that can help you.” The FDA approved one medicine that out of the 20% of the people that actually took the medication only 20% of them lived 3 months longer.

In Denny’s words: “I feel that the FDA approves what they want to approve, how do you like them odds? I feel that if it was one of their own, things would be different.” So heart in hand and hopes crushed yet again, Denny and Diana went home knowing what they already pretty much knew. I don’t know how many of you saw the story of “Jenifer” who also had ALS, died Dec 16, 2003. There was a lifetime movie of her life. She and her sisters are the founders of Project A.L.S. web site http://www.projectals.org/. But the point I wanted to make with this that if you saw the movie. You could see some of the cold, heartless medical personnel, and how they react to people with this disease. I am not saying that there are not some wonderful people out there who do understand and have a heart. I will never give up hope; someone out there has to find a cure. Medical science can create a disease to kill the world and make a vaccine against it. We can spend billions on this; we spend billions on cancer research and again no cures. Makes you wonder where the priority of our government lies; with killing or healing?” Denny has a few choice words of his own, but we will save this for the book. Wait till you get a load of that.


A guest writer

November 15, 2007

As some of you already know, friends and family of Denny are more than welcome to contribute articles to the blog. This is by no means a closed endeavor. You don’t need to feel obligated to write something for the blog – it is a difficult thing to do when you sit down to really think through it. To write is to reflect. To reflect is to comprehend. To comprehend is to make it a part of you. And making this subject a part of you is a large leap to undertake.

That being said, one more brave soul is taking that leap this week. The following was sent in by Jessica Sensenstein:

My 2nd Dad

Contributed by: Jessica Sensenstein

I have known Denny Parsons since I was 11. I met Jessica his oldest in the 6th grade and we instantly became best friends. I started going over to their house all the time. Denny soon became like a second dad to me. Denny is the type of person that makes you feel so comfortable and you can tell him everything. He is like a big kid. My high school years were very tough for me and Denny was there. He opened up his heart and home for me. Every weekend Jessica, I and some other girls were always over there and he would make breakfast for us and Pat from down the street would come down. They were my second family. Jessica and I would go down to Pats and goof off, and then we would steal, I wouldn’t say steal but borrow some of Pats stuff in his garage when he wasn’t home. It was so funny and he knew it was us and Denny got a big kick out if it!! No matter what I had problems with I could always go to Denny, if I ever needed anything. In December 2005 my dad died and Denny was there. I know my dad is up there looking down and is ok that Denny has become my second dad. No matter what kind of day I had Denny could always make me smile and anyone for that matter. Denny is an amazing guy and I know this is hard for him and everyone close to him, but I know he will fight his hardest. I honestly don’t know where I would be with out Denny and Jessica. I love you Denny!!


Opening Up

November 9, 2007

This is very new to me… I don’t tell people how I feel..what I think about.. My father Denny Parsons is a great man..really I mean that I would even think that if I was a stranger and had a chance to meet him.. His disease………god where do I start? It makes you think..why? why something like this could happen to a man that is such a great person? This effects the whole family..but most of all this effects him.. I remember sitting at his house one night we were talking and he looked at me and said ” Jessica I am scared” we both started to cry. We said a lot to eachother that night but that is the one thing that scared me the most of all……. When I go over to see him, he makes me smile he has such good spirits, he smiles, laughs, jokes around. Lately he has been ok he has braces to help his walking, he called me one morning and was happy he was feeling great. That made me happy I don’t think I have heard him that happy in a long time.


The New Driveway

November 9, 2007

On Saturday, November 3rd, a couple Eagle Scouts, Perrin Concrete Co., and some old friends got together under the leadership of an Eagle Scout candidate and did some real good for Denny. Sue will be posting another article soon with more details, but in the meantime, here’s some photos from the day.

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